When I was diagnosed with Chiari Brain Malformation I was saddened that I didn’t receive much in the way of resources and emotional support from doctors or receive any guidance to help me when my symptoms became worse over time. I was felt very isolated and alone. I had to do everything in my power to find vital therapies and information (thank you Google!) unlike other researched diseases, Chiari wasn’t something that was known about, I even saw drs where I had to spell the word Chiari to and they didn’t know it was even a neurological condition! I created this Chiari resource page as I wanted to have a place where people like myself could use as a reference and for those people to feel seen and heard! The amount of sheer gaslighting that happens from having an invisible disease takes a mental toll and it is my hope that this can bring validation to those who are suffering. One of the main concerns that I hear from others with Chiari is that they are not taken seriously not only by doctors but by people who are closest to them, please feel free to share this page with your friends and family to bring more awareness and empathy to this condition. Here you will find potential solutions that could possibly help manage symptoms, along with my experiences with various alternative health modalities, my story along with others who went for the minimally invasive filum extradural sectioning at the Institute of Chiari in Barcelona (ICSEB), recipes and links to other resources. This page serves as a reference and resources for people and not in any way should be taken as giving medical advice. It is my hope this site will inspire, give hope and give you any additional insights and therapies to help manage the condition and help you to find the right treatment and therapy options suitable for your situation! With love, Michelle
